Tuesday, February 26, 2013

the life ahead...


5 more days until JAM 2013. Hard to believe that this will be the 5th JAM Jocelyn will be participating in. It is both sad and encouraging at the same time. Happy that she can walk and run and play, sad that is takes such strong medicines to accomplish. I wonder what the years ahead hold for her in terms of her disability and chronic illness. Hope for less pain, more fun and yet at the same time sadness over a childhood scarred with medicines, doctors, injections, surgeries, and great emotional pains for all of us.


Tuesday, January 15, 2013

updates...

I suck at blogging. ha! When was my last blog post?

Life with Jocelyn has been great, always fun, always busy but always worth it! I wouldn't change much if anything at all. Jocelyn started back with swimming lessons in November 2012 after a year off. She loves swimming so much, and it's such a great sport/activity for her BPI and her JIA. After the last session ended in December she had passed and moved up from Polliwog to Trout at the YMCA. She can now swim a bit with no floaters  It's is still difficult and she cannot swim very far or for long with out but it's a start in the right direction. many times I wondered if she would ever have enough strength and ROM in her left arm/shoulder to swim. She's so damn strong!

She loves school, she's still a bit on the emotional side as I am sure she will be her whole life, but overall she's a happy little 1st grader. Adventure club is great, she learns so much being around kids of all ages, cultures, learning levels etc. And the staff is wonderful!

Christmas was great, lots of fun with family. Jocelyn got more then she needs even after trying to scale down because she is one lucky little girl and gets so much all year long.

Well better get back to work, will try to write more next time it pops into my head!